Ο Σύλλογος Ατόμων με Στομία Ελλάδας ιδρύθηκε το 2021 από τα μέλη της διαδικτυακής ομάδας «Ζώντας με στομία». Τα μέλη της ομάδας μη έχοντας την εκπροσώπηση ενός θεσμικού οργάνου, και αντιλαμβανόμενα την ανάγκη αλλά και την αναγκαιότητα για νόμιμη θεσμική εκπροσώπησή τους, αποφάσισαν μετά από πολλές συζητήσεις την ίδρυση αυτού του Συλλόγου.
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